Meningioma on My Mind Revisited...
It's been four years since the following guest commentary ran in the Denver Post.
http://www.lizholzemer.com/upload/A%20tumor%20on%20my%20mind.pdf
What's changed?
Thankfully, Brain Tumor Awareness is celebrated for the entire month of May instead of just a week.
I personally believe there is greater awareness for brain tumors, but they still remain understudied and underfunded.
Unfortunately, what continues to remain unchanged is a cure for the more than 120-plus brain tumors.
How do you plan to celebrate Brain Tumor Awareness Month?
As always, thanks for sharing.
Pretty much self-explanatory and how I felt after 15 hours of brain surgery to remove a massive brain tumor called a meningioma I survived on February 11, 2000 followed by a second surgery to repair a CSF leak a few months later. I was always quirky to begin with and two craniotomies later, you could say the upstairs nuts, screws and bolts have enhanced my personality. Join in on the fun if you like wacky, warped musings, rants, raves and the like.
Monday, April 30, 2012
Monday, April 23, 2012
Meningioma Monday...
It's easy to let all the accompanying baggage of a meningioma bog us down so I thought I'd pass along an exercise one of my Meningioma Mommas shared with me. No heavy lifting to worry about--this one allows you to release mental steam. Enjoy and if you have a chance, share yours.
WHAT A MENINGIOMA CANNOT DO!!!!
It cannot cripple _________________.
It cannot shatter__________________.
It cannot corrode__________________.
It cannot destroy___________________.
It cannot kill_______________________.
It cannot suppress___________________.
It cannot silence_____________________.
It cannot invade______________________.
It cannot steal_______________________.
It cannot conquer_____________________.
WHAT A MENINGIOMA CANNOT DO!!!!
It cannot cripple _________________.
It cannot shatter__________________.
It cannot corrode__________________.
It cannot destroy___________________.
It cannot kill_______________________.
It cannot suppress___________________.
It cannot silence_____________________.
It cannot invade______________________.
It cannot steal_______________________.
It cannot conquer_____________________.
Monday, April 16, 2012
Meningioma Monday...
Cooking for a Cure! |
With National Brain Tumor Awareness Month kicking off May 1, Meningioma Mommas has a wonderful opportunity to further expand our meningioma research reach.
I'm currently in discussions with Dr. John Y. K. Lee who is an Assistant Professor of the Department of Neurological Surgery at the University of Pennsylvania School of Medicine and the Medical Director for Penn Gamma Knife at Pennsylvania Hospital.
Dr. Lee's years of research has resulted in refining an algorithm that could have the ability to predict higher grade meningiomas earlier and eventually lead to extending a patient's survival by giving doctors the opportunity to intervene when the tumors are smaller. This would also lead to significantly reducing wait-and-watch time or potentially eliminating it all together.
Needless to say, this is beyond exciting and the fact that Meningioma Mommas could be instrumental in funding this research is just as thrilling. Dr. Lee’s enthusiasm and passion for meningiomas is contagious. Not only is he brilliant, he has youth on his side to benefit us for a very long time.
Just a small catch--we need $$$ to kick-start this project. Fortunately, our Cookbook Meningioma Match is back. With meningiomas making the National and International news this week, one of our very own has offered to match dollar for dollar every time a Feeding the Mind Soul Cookbook is sold. We need to raise $5,000-$10,000 for seed money. I'm convinced this is DOABLE. Let’s move these once and for all while making a statement to Dr. Lee Young during National Brain Tumor Awareness Month!
Finally, not to twist any one's arm or anything, but for those savvy social media types out there (yes, YOU!), please feel share to pass along. Let's join together to combat this misunderstand, easily dismissed, and poorly understood tumor that affects us all.
Only $15 each or 2 for $25, which includes PRIORITY SHIPPING and excellent customer service.
Order 2 ways:
Pay Pal:
Scroll to the bottom of the link to enter order
http://www.meningiomamommas.org/mommas-merchandise
Snail mail:
Meningioma Mommas
9249 S. Broadway Blvd.
Unit 200-PMB#240
Highlands Ranch, CO 80129
Monday, April 9, 2012
Meningioma Monday...
Words to inspire and live your life as you desire.
My meningioma journey has enabled me to embrace Sir Cecil's risk taking mantra. If I can overcome the fear of having a meningioma, I can face anything.
"Be daring, be different, be impractical, be anything that will assert integrity of purpose and imaginative vision against the play-it-safers, the creatures of the commonplace, the slaves of the ordinary."--Sir Cecil Beaton
What risks and new endeavors have you taken since your brain tumor diagnosis?
Labels:
brain tumor diagnosis,
Meningioma Monday,
risks
Monday, April 2, 2012
Meningioma Monday...
No Foolin'! Hunter's early arrival on April Fools Day eight years ago is a medical marvel I am beyond blessed to celebrate.
Happy Birthday Triple-H!
Happy Birthday Triple-H!
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